Diabetes Blog Week: Day 5, “Freaky Friday,” aka the Post In Which We Swap Auto-Immune Diseases

“Just like in the movie, today we’re doing a swap. If you could switch chronic diseases, which one would you choose to deal with instead of diabetes? And while we’re considering other chronic conditions, do you think your participation in the DOC has affected how you treat friends and acquaintances with other medical conditions?”

Since I am familiar with it, I think we’ll go with Celiac Disease. As I’ve said earlier in the week, John was diagnosed with diabetes in February of 2005. In August of 2007, his older brother, Luke, was diagnosed with Celiac Disease.
Celiac definitely puts a cramp in socializing. Everything revolves around food and it seems that gluten makes the world go round.
Taking our own food and being careful on those rare occasions we eat out as a family makes it more doable, though still complicated. I don’t like potlucks. Really I don’t. I have a fear of the unknown and I want Luke to feel well and be healthy.
With that said, I’d still take Celiac any day over Diabetes.
With celiac, as long as Luke has safe food, he’s good to go.
Obviously, with diabetes, just having insulin does not mean John is good to go. The testing, 8-10 times a day, the site changes, the night times (which his daddy, aka Super Daddy, does 90% of the time), monitoring exercise and illness.
No comparison as far as immediate health or long-term health.
From what I understand (and I am not a medical professional), a compliant person with celiac should have no ill health effects. Maybe ever.
From what I understand (and again, I am not a medical professional), a compliant person with diabetes can do everything “right” and still have issues. Anytime.
But really, what it there to understand about diabetes. It is a frustrating disease that can change on a minute’s notice. I feel like we”re in a bad Star Trek episode and being “beamed” somedays. Just when I get the blood sugars where I want them: “beam”–allergies, sickness, vacation lows, vacation highs, etc.

We have had more people express sympathy over celiac, it seems, just in the “Poor Luke, he can’t eat this gross, plastic-tasting birthday cake from XYZ discount store.”
Honestly, (and I have said this nicely) I would give the whole family (all eight!) Celiac if I could take away John’s diabetes. Yes, I would. In a heart beat.


The Six Sibs going round without gluten!
On the front row, Luke is on the left and John is in the middle.

I will answer the second part of the prompt a bit differently than it was meant, since this week is really my first real “participation” in the DOC. I had never heard that term until the last few months. It was just after the 7 year diagnosis mark that we received an e-mail newsletter from Medtronic, which contained a review from Meri. I had been reading blogs for several years, but it didn’t occur to me that there would be diabetes-specific blogs.

Anyway, I would say that just having a child with a chronic illness has made me aware of others with chronic illness or disability. We’ve had people say things like “I don’t think I could do what you do,” But I respond with “You do what you have to do.” I look at children with autism, in wheelchairs, needing liquid nutrition, etc. and sometimes think the first sentiment, then realize that their parents probably echo my thoughts. They have been called to different trials and I appreciate them for their loving care and perseverance.

Romans 12:12 (NIV 1984)
“Be joyful in hope, patient in affliction, faithful in prayer.”

Five Minute Friday: Jump

Writing again for the Five Minute Friday community.


What did I jump into in this life?
Lover of Jesus. Check.
Marriage. Check.
Motherhood. Check.
Homeschooler. Check.
Official carb-counter and insulin giver. Check.
Gourmet gluten-free chef. Check.

Many titles. Some for real, some in jest. All part of this life I made a jump for. Time to pray, asking The Lord for help with these titles, this life I am living. Loving, caring, being with my family. Learning to serve others better.

So glad I made the jump.



Kyle took this “jump” photo of Mommy and Paul being photographed by Adam.

Psalm 106:1 (NKJV)
“Praise the Lord!
Oh, give thanks to the Lord, for He is good!
For His mercy endures forever.”

Five Minute Friday

Day 2: Find a Quote and Use it as Inspiration

Worry has probably been the biggest roadblock for me on our journey to living with diabetes and celiac.
I have often thought that if I had personally been diagnosed I wouldn’t worry nearly as much, but since it affects my boys, the worry increases ten fold by ten fold by ten fold, until some days I can have myself worked up, stressed out and fearful about their futures, especially for John, my medium-guy with diabetes.

I thought going to scripture and seeing what God has to say about worry would be helpful to me, and I hope others as well.

In my search for quotes and verses for this post I came across the blog whatchristianswanttoknow.com: Bible Verses About Worry: 20 Comforting Scripture Quotes.

As I read, I tried to put each verse in the context of our life with diabetes and celiac. For length’s sake, I chose the 10 verses or passages that stood out to me today.

Matthew 6:25 and 27 “Therefore I tell you, do not be anxious about your life, what you will eat or what you will drink, nor about your body, what you will put on. Is not life more than food, and the body more than clothing? And which of you by being anxious can add a single hour to his span of life?

Matthew 6:34 “Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is its own trouble.

Matthew 11:28 Come to me, all who labor and are heavy laden, and I will give you rest.

2 Thessalonians 3:16 Now may the Lord of peace himself give you peace at all times in every way. The Lord be with you all.

Philippians 4:6-7 Do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God. And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.

1 Peter 5:7 Casting all your anxieties on him, because he cares for you.

Psalm 23:4 Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.

Psalm 56:3 When I am afraid, I put my trust in you.

Psalm 121:1-2 I lift up my eyes to the hills. From where does my help come? My help comes from the LORD, who made heaven and earth.

Proverbs 3:5-6 Trust in the LORD with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.

I will leave you with a few quotes about worry, from one past and two present Christian leaders. I hope they will bless you today.

Worry does not empty tomorrow of its sorrow. It empties today of its strength.- Corrie Ten Boom

Worry is the sin of distrusting the promise and providence of God, and yet it is a sin that Christians commit perhaps more frequently than any other.- John MacArthur

No one can pray and worry at the same time.- Max Lucado

Day 1: Why I Write About John and Luke’s Health

This is my first time writing for National Health Blog Post Month or NaBloPoMo on my baby blog. One of the choices of prompts for today was “Why I write about my health.”
I am writing about John and Luke’s health to hopefully encourage someone new on the journey to type-1 diabetes or celiac disease that their “new normal” is doable, difficult as it may be at times. Also, I hope to be able to bless someone that has been on one or both of these journeys for awhile. Being a parent of children with health issues can be tiring and lonely and I know that I appreciate any bit of encouragement or help that I can get.